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"Research is essential to advance the field of rare diseases" (14/10/2013)

Professional associations and representatives of Latin American and European rare diseases come together this week in Murcia to celebrate the I Iberoamerican Meeting on Rare Diseases.

The Councillor for Social Welfare and Health, Maria del Carmen Pelegrin, accompanied by the Minister of Health and Social Policy, Ángeles Palacios Sánchez, have received this morning the participants in the first meeting being held in Murcia, which brings together representatives from 10 American and five European countries.

During his speech, Pelegrin has stressed the importance of associations to work for these people, while stressed that from the city of Murcia is still awarding grants and providing space for the implementation of headquarters of associations and groups.

As reported by the Minister of Health and Social Policy in the Region of Murcia has a disease registry that in one year, went from 4000-11000 records.

76 rare diseases per 10,000 inhabitants.

Research is essential to the advancement of rare diseases, pointed Palacios, who has also said that, besides having the rare disease registry and make the heel prick known, also have a unit genetic diagnosis and treatment There you have to add the research project with the University Carlos III.

Source: Ayuntamiento de Murcia

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