Portal de Murcia
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The Delegate of ERDF in Murcia, Juan Carrion Tudela, and the Director General of El Pozo Murcia FS, Fran Serrejón, held a meeting which highlighted the coordination of both institutions to hold a commemorative event at Saturday's match-Sala El Pozo Murcia 10 Zaragoza, on the occasion of World Day for Rare Diseases held on 28 February.
Children and family associations of rare diseases in the Region of Murcia attend the meeting for the 20 th day of the LNFS will face this Saturday at El Pozo Murcia Zaragoza to Room 10 at 16:30 pm in the Palacio de los Deportes Murcia and broadcast live by GTM Murcia.
Prior to the start of the game, players from both teams will jump to the track with the World Day commemorative T-shirts and accompanied by children will carry a banner with the slogan of Frederick BY EQUAL OPPORTUNITIES FOR PEOPLE WITH DISEASES. "
Given that:
"In Spain there are 3 million people affected by these diseases.
"The 65% of diseases are chronic, severe and highly disabling.
"There are no treatments or therapies for most rare diseases.
"The 20% of people take an average of 10 years to find a correct diagnosis.
"The 30% of families suffer impoverishment having to spend more than 20% of their income to cope.
Source: ElPozo Murcia
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