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City Hall and AMUPHEB commemorate the National Day of Spina Bifida to raise awareness about the pathology (20/11/2020)

| The Murcian Association of Parents and Children with Spina Bifida (AMUPHEB) was founded in 1980, as a result of the concern and concern of a group of parents about the situation and future of their children.

It currently has more than 600 partners | The mayor of Murcia, José Ballesta, together with the councilor for the Elderly, Disability and Development Cooperation, Paqui Pérez, and the president of the Murcian Association of Parents and Children with Spina Bifida (AMUPHEB), attended this morning the institutional ceremony held with occasion of the National Day of Spina Bifida, which is commemorated tomorrow, November 21.“The Murcian Association of Parents and Children with Spina Bifida is one of those entities that carry out essential work and that are essential in our civil society, an institution that was founded in 1980, as a result of the concern and concern of a group of parents for the situation and future of their children, who wanted to share their experience around this pathology, and which currently has more than 600 partners and gives direct response to more than 225 users, also providing help to all their relatives ”, highlighted José Crossbow.During the event, the Commemorative Manifesto of the National Day of Spina Bifida took place.

Universal accessibility, inclusive education and the launching of information awareness campaigns were some of the themes exposed in the manifesto.'Associations today are more necessary than ever'Also, Amupheb presented the campaign 'Associations today are more necessary than ever.

Now claiming is what is important ', which is being carried out at the national level, promoted by the Spanish Federation of Spina Bifida and Hydrocephalus Associations (FEBHI).

In Murcia, this initiative is being developed by Amupheb.Promote quality of life and full integrationThe objective of the Murcian Association of Parents and Children with Spina Bifida is to promote the interest and the good of those affected, as well as favor their quality of life and full integration.

To this end, Amupheb promotes different activities and projects.Information, orientation and advisory services; family support home; psychological intervention; physiotherapy; and the Spina bifida Multidisciplinary Unit are some of the services carried out by the Murcian association.

Source: Ayuntamiento de Murcia

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