Portal de Murcia
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AELIP, participated in the Open Door Conference 2020 organized by the Spanish Federation of Rare Diseases FEDER and which took place on February 6 in the city of Murcia.
The conference allowed the creation of a space to reinforce the cohesion of the associative movement and transfer the future actions of the ERDF with the aim of improving the quality of life of the more than 100,000 people living in Murcia with a rare disease.
One of the axes of this meeting was to know the activities scheduled for the World Rare Disease Day organized by ERDF.
The associations present, had the opportunity to know the motto and the axes of the campaign for 2020, request the campaign material, know the main regional and state dates discover the ERDF Awards and receive information about the unique call for aid for this 2020
In addition, the associations present were invited to attend the VI Regional Conference on Rare Diseases organized by FEDER together with the City of Molina de Segura and the Molina Hospital.
The appointment will be next Friday, February 21, in the Plenary Hall of the City of Molina de Segura, from 4:00 p.m. to 8:30 p.m.
AELIP was represented by the delegate of the association in Murcia, Sonia Guerrero and by her social worker Jose Jerez.
Source: AELIP
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