Portal de Murcia
www.portaldemurcia.com
The façade of the Annex Building of the City Hall will be illuminated next Sunday in purple on the occasion of World Intestinal Inflammatory Disease Day, which is celebrated on May 19.
The councils of Infrastructure, Public and Sports and Health Services and Works, directed by Rebeca Pérez and Felipe Coello, respectively, respond to the request made by the association ACCU-Murcia together with the Confederation of Associations of Crohn's Disease and Ulcerative Colitis of Spain, ACCU Spain.
With this initiative they intend to make visible this group of diseases, among which are Crohn's disease and ulcerative colitis, so that society knows them and the needs of those who suffer from them can be resolved.
Purple lighting began in 2015 in the United Kingdom and since then, every World Intestinal Inflammatory Disease Day has been repeated with considerable success internationally, with many renowned places and monuments around the world, such as the Tower of Pisa or the Colosseum, which lit up with a very positive impact on the visibility of Crohn's disease and ulcerative colitis.
Images of illuminated landmarks will be shared with the hashtags # worldibdday2019 and #makingtheinvisvisiblevisible (making the invisible visible), emphasizing both the symptoms and the impact of crohn and ulcerative colitis on people who suffer from them and who do not They are always visible to society.
Inflammatory bowel disease (IBD) encompasses a group of diseases of the digestive system that are ulcerative colitis and Crohn's disease.
They are immunomediated, inflammatory and chronic diseases, which interspersed periods of activity, called outbreaks, and inactivity or remission.
These diseases alter the body's ability to digest food and absorb nutrients and affect people of all ages.
Some of the symptoms of Crohn's disease and ulcerative colitis are abdominal pain, fatigue or incontinence.
Today they have no cure and can become a disabling disease for those who suffer.
In Spain more than 300,000 people have an inflammatory bowel disease and in Europe the figure rises to about 3 million.
However, by not leaving many signs in the physique of the people who look like it is a disease unknown to a large part of society, hence the importance of giving visibility.
In addition, the disease has a great impact on the quality of life.
About 79% of patients with crohn and ulcerative colitis consider that their quality of life is very or very affected by the disease.
41% say that it affects their work (may be due to the extra effort they perform to fulfill their duties or adapt to their schedules despite the symptoms and pains or the losses, ...) and 39% It affects your sleep hours.
46% have emotional problems, something understandable because the process of coping with the disease and its limitations is not easy and can last for years.
In addition, all this can affect relationships with people in the patient's environment.
Sometimes you need to follow another rhythm and this implies, for example, cancel plans because the outbreaks are unpredictable or that you can not always be 100%.
Source: Ayuntamiento de Murcia
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